RESOURCES

21^st Century Cures Act as it Impacts the Rare Disease Community
(Kelly Austin, PhD, Sandra K. Heibel, PhD, and Marlene E. Haffner, MD, MPH)

National Institute of Health (NIH),
Office of Rare Diseases

National Organization for Rare Diseases (NORD)

US Food and Drug Administration / Orphan Drug Act

2009 interview with
Marlene E. Haffner, MD, MPH

2006 Nature Publishing
Group article

International Conference
on Rare Diseases

"FDA works to speed up
'orphan drug' process"
by Lorna Benson,
Minnesota Public Radio (see below)