21st Century Cures Act as it Impacts the Rare Disease Community
(Kelly Austin, PhD, Sandra K. Heibel, PhD, and Marlene E. Haffner, MD, MPH)
National Institute of Health (NIH),
Office of Rare Diseases
National Organization for Rare Diseases (NORD)
US Food and Drug Administration / Orphan Drug Act
2009 interview with
Marlene E. Haffner, MD, MPH
2006 Nature Publishing
Group article
International Conference
on Rare Diseases
"FDA works to speed up
'orphan drug' process"
by Lorna Benson,
Minnesota Public Radio (see below)
Address:
Haffner Associates, LLC
11616 Danville Drive
Rockville, Maryland 20852
Phone:
(301) 984-5729 - office
(301) 641-4268 - cell
Email: